Sometimes your CML might mean that you are not able to do the things you used to do before. The condition itself and the medicine you’re taking can make you feel more tired than usual, or unwell in other ways.1 Living with a long-term condition like CML can also affect your mood and confidence levels, which may lower your motivation to socialise. The balance of activities in your life might slip, which can be a vicious cycle.2
Try thinking about what you value about your regular social activities, and then think about ways you can adapt the activity but still get the thing that you value. Ask yourself this series of questions:2
Here are some suggestions for adapting your activities:
Talk to your friends
Others may not understand how CML affects you. You might look and seem well, and may still be working. So they may think you’re able to continue with all your usual activities, which can be frustrating and put pressure on you. Or you may find the opposite is true, and friends stop inviting you out because they think you won’t feel well enough. They may not want to ask you how you’re feeling because they’re worried about upsetting you. This can leave you feeling lonely and left out. The best way to avoid both these situations is to be honest with your friends. You could think about letting them know that:
Chellingsworth M. (2016) Behavioural Activation planning tips - my values worksheet. Accessed May 2018.